Living For Today, Preparing For Tomorrow

Living For Today, Preparing For Tomorrow (under development) will attempt to address all aspects of living with DMD including emotional and social issues, dealing with schools (IPEs, aides, etc.), choosing wheelchairs and other tools, parents' experiences with medications and non-traditional treatments, finding resources and funding, etc. It will also include inspirational poems and stories submitted by parents and others, and the experiences of older teens and men living with DMD.

The goal of Living For Today, Preparing For Tomorrow is to help parents and guardians anticipate and prepare for the future without dwelling in tomorrow. I will publish sections of this book on the www.LivingForToday.org website as they are developed. Once complete, I hope to publish in book form so it is available in print as well.

It is hoped that Living For Today, Preparing For Tomorrow will stop requiring each parent to be a “trailblazer”. For each step in the parenting experience, others have gone before. What were their experiences? What worked for them? What didn’t work? What were their challenges? Their frustrations? Their worries? Their joys?

Much of the material will be derived from the DMD Forum and MD-List discussions. Permission will be sought from individuals before any quotations are used.

While Living For Today, Preparing For Tomorrow will directly address Duchenne Muscular Dystrophy, most information should be applicable to families facing other MDs and other chronic and terminal illnesses.

This article is from Living For Today, Preparing For Tomorrow. From Parents. To Parents. A Parent's Guide to Living with Duchenne Muscular Dystrophy

This book is dedicated to the parents and guardians who battle against their worries, who must prepare for tomorrow and yet grab hold of today, striving to make today the best day for their children and family.

"Do not worry about tomorrow for tomorrow will worry about itself.
Each day has enough trouble of its own." MATTHEW 6:34 NIV

This article may be freely copied and distributed by print or email provided it is copied and distributed in its entirety (including this Dedication & Copyright notice) and is distributed at no cost. Any other use (including publishing on the web) is prohibited without prior written authorization.

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